For families living with PKU and mild HPA

The lab report has arrived. What matters is the trend.

PheLog is a diary for your child’s Phe blood levels. Enter a value, read it from the traffic light and understand it over months and years. Everything stays on your iPhone.

Coming soon to theApp Store Watch the video (2 min)

How it works

From the letterbox to the next appointment

After the diagnosis, lab reports arrive at regular intervals. PheLog keeps all values in one place, so you and your metabolic centre can see how things develop.

The report arrives

Some labs report µmol/l, others mg/dl. You enter the value exactly as it is printed. PheLog converts it automatically.

In the report334 µmol/l
In the app5.5 mg/dl

Logged in seconds

Date, value and, if you like, a note such as “infection” or “holiday”. Older reports are easy to add later.

Entering a new value: date, phenylalanine 4.2 mg/dl, the converted value in µmol/l and the label “in target range”. The app interface is in German.

The trend tells the story

The statistics show every value as a curve, plus the average, the share within target and an overview by year of age.

Statistics with a trend curve from 2017 to 2026, the target range shaded green and the warning limit as a red line.

The traffic light

Your limits, your traffic light

Every value gets a colour. Your metabolic centre decides which limits apply to your child, and you set exactly those limits in PheLog.

  • In target rangeThe value is at or below the upper limit of your target range.
  • ElevatedAbove the target range, but not above the warning limit.
  • Above warning limitThe value is above the warning limit you have set.

The defaults are 360 µmol/l (about 6 mg/dl) for the target limit and 600 µmol/l (about 10 mg/dl) for the warning limit. They are only a starting point; your centre’s guidance always comes first.

Settings: form “classic PKU”, unit mg/dl, target range up to 6.0 mg/dl and warning limit from 10.0 mg/dl, each with plus and minus buttons.
Apple Watch: latest value 5.5 mg/dl in a green ring, in target range.
Apple Watch: quick entry with the value 5.7 mg/dl, plus and minus buttons and a save button.

Apple Watch

The latest value, right on your wrist

The watch shows the latest value in its traffic-light colour. When a new result comes in, you can log it in a few seconds, even if your iPhone isn’t to hand.

  1. Tap “Neuer Wert” (new value).
  2. Set the value with the Digital Crown or the buttons, and pick an earlier day if needed.
  3. Save. The watch sends the value straight to your iPhone as soon as it is nearby.

For every form

From mild HPA to classic PKU

Specialists call it PAH deficiency: a liver enzyme breaks down phenylalanine (Phe) only to a limited extent. How limited varies from child to child. PheLog works the same way for every form.

Slightly raised

Mild HPA (MHP)

120–600 µmol/l · 2–10 mg/dl

The enzyme still works fairly well. A diet is usually not needed; regular check-ups show whether the levels stay stable.

Clearly raised

Mild PKU

600–1200 µmol/l · 10–20 mg/dl

The enzyme has little residual activity. Your centre decides on the treatment. The blood levels show whether it fits.

Strongly raised

Classic PKU

above 1200 µmol/l · above 20 mg/dl

The enzyme barely works or not at all. Detected early and well supported, children usually develop normally. A complete record of levels helps.

Typical untreated levels, usually measured at diagnosis. The exact limits vary slightly between guidelines.

Setup: choosing the form, with “classic PKU” selected and an option for “not sure”. The app interface is in German.
Knowledge tab with a card about the selected form and topics such as “What is PKU?” and “Inheritance”.

Choose the form, read up on it

When you first open the app, you choose the form. If you don’t know it yet, pick “not sure”; the app still works fully. The “Wissen” (knowledge) tab covers the essentials about PKU, inheritance, newborn screening and blood sampling, with sources for further reading.

Explainer video

PheLog in two minutes

What PKU is about and how PheLog helps day to day. The video is narrated in German; English subtitles are switched on.

2:04 min · German narration · English and German subtitles Open video directly · Transcript as text file

Privacy

Your child’s values stay with you.

Health data is among the most sensitive data there is. That’s why PheLog has no server, no sign-in and no internet connection.

  • Accounts

    No sign-up, no email address, no password. Open the app and start.

  • Trackers

    No analytics, no ads, nothing shared with third parties. This website doesn’t set cookies either.

  • Place for your data

    Your iPhone. The watch syncs directly with it. A CSV file only exists if you export one.

The details are in the privacy policy.

Also included

Small things that help day to day

mg/dl and µmol/l

Enter and display values in either unit; the app does the conversion.

Notes on each value

Infection, holiday, a different lab: whatever explains a value sits right next to it.

Age at every test

With a date of birth, PheLog shows the age for each value and groups results by year of age.

CSV export and import

Back up values as a spreadsheet, share them with your centre or bring them in from Excel or Numbers.

Compare periods

All time, three years or twelve months, grouped by calendar year or year of age.

Free, no ads

PheLog is a private, non-commercial project. No subscriptions, no in-app purchases, no ads.

Coming soon to the App Store

PheLog runs on iPhone and includes an Apple Watch app. The app’s interface is currently in German. As soon as PheLog is in the App Store, you’ll find the link here.

Coming soon to theApp Store Questions and support

PheLog records values and gives no advice on diet, dosage or treatment. Neither the app nor this website replaces medical advice. Your metabolic centre’s guidance always comes first.